Cystinosis is a rare lyosomal storage disorder affecting around 1 in 100,000 to 200,000 newborns worldwide.
Their report, appearing in the July 12 issue of Science Robotics, maps some of the ethical considerations for governments, policy makers, technologists, and clinicians, and urges stakeholders to come together to rapidly develop guidelines for trust, agency, engagement, and real-world efficacy.
Knowing a tumor's molecular type enables neurosurgeons to make decisions such as how much brain tissue to remove and whether to place tumor-killing drugs directly into the brain - while the patient is still on the operating table.