Open Call SC1-HCO-20-2020: Coordination of Clinical Research Activities of the European Reference Networks

European CommissionEuropean Reference Networks (ERNs) have been established under the Directive on Patients' rights in cross-border health care in view of tackling complex or rare diseases and conditions that require highly specialised diagnostic tools and treatments. ERNs in collaboration with other European initiatives will gain major research potential due to their network structure bringing together highly specialised multidisciplinary expertise across Europe andaccess to patient populations of rare diseases and complex conditions that require highly specialised treatments. Realisation of this potential requires highly organised coordination among the 24 ERNs, which operate in 26 countries, over 300 hospitals and more than 900 health care units, and also with other Europe-led research collaborations beyond the networks, with all the other actors in the field of rare diseases research, especially the European Joint Programme on Rare Diseases. Support for coordination of the research aspects of ERNs is currently limited.

Scope

This activity will aim at enhancing research and innovation capacity of the ERNs in view of achieving the goals of the International Rare Diseases Research Consortium (IRDiRC) for bringing new diagnostic tools and therapies more efficiently to the patients and for developing methodologies to assess the impact of diagnoses and therapies on rare disease patients, taking into account sex and gender differences where relevant. Support will be given to identify research priorities and potential synergies among ERNs and coordinate research and innovation activities to be tackled by ERNs. The project should address fostering collaboration in the field of clinical research among ERNs, ERN-independent clinical research collaborations and other stakeholders, such as research infrastructures, industry and patient organisations, as well as international collaboration with other clinical research networks. Close collaboration with the European Joint Programme on Rare Diseases will be necessary to ensure complementarity, to achieve relevant synergies and avoid overlaps. To ensure broad geographical representation and participation across ERNs the proposals shall involve participants from several countries and aim at engaging all approved ERNs and other relevant research networks in Europe.

The Commission considers that proposals requesting a contribution from the EU of between EUR 1.5 and 2 million would allow this specific challenge to be addressed appropriately. Nonetheless, this does not preclude submission and selection of proposals requesting other amounts.

Expected Impact

  • Along the IRDiRC vision to enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention by 2027.
  • Contribute to the development of a comprehensive European ecosystem for rare diseases and conditions that require highly specialised treatments, which brings efficiently results of research and innovation to the benefit of the patients.
  • Enhance synergy with the Connecting Europe Facility Programme and the EU Health Programme which provides support for the functioning of the ERNs and the development of patient registries for ERNs.

Opening date: 04 July 2019

Deadline: 07 April 2020 17:00:00 Brussels time

Deadline Model: single-stage

Type of action: Coordination and Support Action (CSA)

For topic conditions, documents and submission service, please visit:
https://ec.europa.eu/info/funding-tenders/opportunities/portal/screen/opportunities/topic-details/sc1-hco-20-2020

PS: Find your partners or consortia preparing a project proposal
If you need help to identify a potential partner with particular competences, facilities or experience, please join and explore (HEALTH IT) SPACE www.healthitspace.eu.

Most Popular Now

Orion Health Supports Professional Recor…

Orion Health is supporting the Professional Record Standards Body's partnership scheme by applying to become a 'quality partner'. The company, which is one of the UK’s leading providers of shared care...

FDA Authorizes Software that Can Help Id…

Today, the U.S. Food and Drug Administration authorized marketing of software to assist medical professionals who examine body tissues (pathologists) in the detection of areas that are suspicious for cancer...

Northumbria Healthcare Picks CliniSys to…

Pathologists at one of England's most innovative trusts have chosen the CliniSys laboratory information system (LIMS) as part of a digital strategy to support its drive to continually improve patient...

Study Finds Telemedicine Appointments Re…

Telemedicine appointments combined with in-person visits significantly reduced the risk of further illness for children with medically complex cases, according to results of a new study by researchers with The...

Contact-Tracing Apps could Improve Vacci…

Mathematical modeling of disease spread suggests that herd immunity could be achieved with fewer vaccine doses by using Bluetooth-based contact-tracing apps to identify people who have more exposure to others...

A Computer Algorithm Called 'Eva' May Ha…

A prescriptive computer program developed by the USC Marshall School of Business and Wharton School of Business of the University of Pennsylvania for Greece to identify asymptomatic, infected travelers...

FDA Clears First Major Imaging Device Ad…

Today, the U.S. Food and Drug Administration cleared the first new major technological improvement for Computed Tomography (CT) imaging in nearly a decade. "Computed tomography is an important medical imaging tool...

Using Internet in Retirement Boosts Cogn…

Using the internet during your retirement years can boost your cognitive function, a new study has found. Researchers from Lancaster University Management School, the Norwegian University Science and Technology and...

AI Tool Improves Accuracy of Breast Canc…

A computer program trained to see patterns among thousands of breast ultrasound images can aid physicians in accurately diagnosing breast cancer, a new study shows. When tested separately on 44,755 already...

Study Shows Trust is still at Heart of N…

A new study has shown that issues surrounding trust are still at the heart of people's reluctance to download and use the NHS App, particularly among Black, Asian and minority...

Time until Dementia Symptoms Appear can …

Researchers at Washington University School of Medicine in St. Louis have developed an approach to estimating when a person who is likely to develop Alzheimer’s disease, but has no cognitive...